How I am dealing with the spiritual, emotional, psychological and physical aspects of having HD

On April of this year, 2007, I took the blood test that can identify the HD gene and I tested positive. Since I had been a minister for 10 years and a chaplain for 3 years, I thought I was prepared for receiving the news. Let me tell you, there is nothing that prepare oneself for this kind of news! This blog is an attempt to capture my feelings and emotions on the day of the news, and the days and months after. For those of you who do not know what HD is, I am including some links for more information and some other places to get knowledge. In this blog, I don’t have any answers, I am only sharing my journey and hope and pray that it will give some insight of the process and how to deal with it. I am also writing this for the purpose of being able to maintain that creative side of my intellect that is so necessary when this kind of an genetic disorder hits. Let me say that I am doing very well today and I will share some of the things that have helped me. I am able to function very well. In fact, I hold a full time job and I will be able to function 100% for a very long time. I am writing this because I want to share this with others and hope that it will give them peace and encouragement. Finally, I have to thank God because through this expereince I have been able to grow in ways that I did not know I could grow. Just as Job, I am able to say; “Naked I came into this world. Naked I will leave it. Blessed be the name of the Lord.” It is God Who gives all things: good and bad. And I am learning that I need the bad just as much, if not more, than the good.

My prayer is that as you journey with me, you will be able to see God present in my life and therefore see Him present in yours.

Chaplain Vance Torres

Here is that HD link.

http://www.hdsa.org/about.html

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